About EB Simplified
Our Mission
EB Simplified is dedicated to making scientific research more accessible and understandable for individuals and families affected by EB.
We believe everyone deserves access to clear, reliable information about the latest advances in EB research. By sharing simplified and accurate summaries of scientific findings, we aim to empower the EB community to make informed decisions, stay updated on medical progress, and feel connected to the breakthroughs shaping their care.
How It Works
Every article on our platform goes through a careful process to ensure it's both accurate and easy to understand.
Simplified for Everyone
Complex research papers are rewritten into clear, plain-language summaries so that patients, families, and caregivers can actually understand them.
Verified by Experts
Every summary is hand-reviewed and certified by scientists and clinicians who specialize in the field — so you can trust what you're reading.
Kyle Wan
Founder
Our Story
In 2023, my grandma was diagnosed with pulmonary adenocarcinoma, more commonly known as lung cancer. However, she couldn't understand her diagnosis, which delayed her treatment. When I spoke with a family member living with Neurofibromatosis, I realized this wasn't just a one-off story — many patients struggle to keep up with the research that could shape their care, because research is hard to understand without a medical background.
That moment set me on a journey to make scientific research more accessible, especially for smaller disease communities where clear, reliable information can be hard to find. I believe every patient and family deserves to understand and stay up-to-date with the science behind their condition, and that's why I started this platform.
Our Team
We are a passionate, volunteer-led team of scientists, clinicians, developers, and advocates working together to bridge the gap between research and the EB community.
Core Team
Kyle Wan
Founder & Lead
Committed to building a user-friendly platform to help researchers share clear, accurate summaries with the EB community.
Kimiya Aframian
Medical Outreach Lead
Kimiya is a medical student at Stanford University highly interested in Dermatology and currently leads the BE rare dermatologic disease team. She was born and raised in Los Angeles and graduated from UCLA studying Psychobiology and Disability Studies. In her free time, Kimiya enjoys the outdoors, cooking, music, travel, and spending time with family and friends.
Jean Tang, MD Ph.D.
Faculty Advisor
Professor of Dermatology at Stanford University. Specializes in patient-centered research and clinical therapeutic development in Epidermolysis Bullosa and other monogenic disorders.
Scientific Contributors
We're a growing network of scientists who volunteer to edit article summaries and share the amazing research being done in Epidermolysis Bullosa with the community.
Joyce Teng
Professor of Dermatology and, by courtesy, of Pediatrics, M.D., Stanford University
Kavita Sarin
Professor of Dermatology, M.D. Ph.D., Stanford University
Peter Marinkovich
Associate Professor of Dermatology, M.D., Stanford University
Joyce Teng
Professor of Dermatology and, by courtesy, of Pediatrics, M.D., Stanford University
Kavita Sarin
Professor of Dermatology, M.D. Ph.D., Stanford University
Peter Marinkovich
Associate Professor of Dermatology, M.D., Stanford University
Get Involved
EB Simplified is 100% volunteer-led, and we're always looking for passionate people to join us! Whether you're into web development, research, database management, design, or community outreach—there's a place for you on our team.
Community Supporters
We're proud to work alongside and be supported by organizations dedicated to the Epidermolysis Bullosa community
